This Aguzzi_readme20240528.txt file was generated on 20240528 by Kaylee Alexander ------------------- GENERAL INFORMATION ------------------- 1. Title of Dataset Exploring the Preferences of Traditional versus Western Medicine in the Spiti Valley Region of India: A Qualitative Approach 2. Author Information Principal Investigator Contact Information Name: Annica Aguzzi, MSPH Institution: University of Utah, Department of Family & Preventive Medicine Address: Division of Public Health, 375 Chipeta Way, Salt Lake City, UT 84108 Email: u1324186@utah.edu ORCID: 0009-0009-2525-1969 Associate or Co-investigator Contact Information Name: Lowell Scott Benson, MD, PhD, MPH Institution: University of Utah, Department of Family & Preventive Medicine Address: Division of Public Health, 375 Chipeta Way, Salt Lake City, UT 84108 Email: scott.benson@hsc.utah.edu ORCID: 0000-0002-4252-9434 Associate or Co-investigator Contact Information Name: Caren J. Frost, PhD, MPH Institution: University of Utah, College of Social Work Address: 395 1500 E, Salt Lake City, UT 84112 Email: caren.frost@socwk.utah.edu ORCID: 0000-0003-3934-3724 Associate or Co-investigator Contact Information Name: Lisa H. Gren, PhD, MSPH Institution: University of Utah, Department of Family & Preventive Medicine Address: Division of Public Health, 375 Chipeta Way, Salt Lake City, UT 84108 Email: lisa.gren@hsc.utah.edu ORCID: 0000-0002-5868-3292 Associate or Co-investigator Contact Information Name: Tejinder Singh, BDS, MPH Institution: University of Utah, Department of Family & Preventive Medicine Address: Division of Public Health, 375 Chipeta Way, Salt Lake City, UT 84108 Email: tp.singh@utah.edu ORCID: 0000-0002-9244-2177 3. Date of data collection (single date, range, approximate date) 2023-08-01 to 2023-10-31 4. Geographic location of data collection (where was data collected?): Spiti Valley; Lahlung; Demul Khas; Khuric; Kwang 5. Information about funding sources that supported the collection of the data: N/A -------------------------- SHARING/ACCESS INFORMATION -------------------------- 1. Licenses/restrictions placed on the data: CC BY NC - Allows others to use and share your data non-commercially and with attribution. 2. Links to publications that cite or use the data: N/A 3. Links to other publicly accessible locations of the data: N/A 4. Links/relationships to ancillary data sets: N/A 5. Was data derived from another source? No 6. Recommended citation for the data: Aguzzi, Annica, Lowell Scott Benson, Caren J. Frost, Lisa H. Gren, and Tejinder Singh. 2024. "Exploring the Preferences of Traditional versus Western Medicine in the Spiti Valley Region of India: A Qualitative Approach." The Hive: University of Utah Research Data Repository. https://www.doi.org/10.7278/S5d-wnrh-fz0r. --------------------- DATA & FILE OVERVIEW --------------------- 1. File List A. Filename: 20231031_Exploring the preferences_ G1_Aguzzi Short description: File with answers and notes from anonymous participants in survey B. Filename: 20231031_Exploring the preferences_G2_Aguzzi Short description: File with answers and notes from anonymous participants in survey 2. Relationship between files: 20231031_Exploring the preferences_ G1_Aguzzi provides the data from group 1; 20231031_Exploring the preferences_ G2_Aguzzi provides the data from group 2 3. Additional related data collected that was not included in the current data package: NA 4. Are there multiple versions of the dataset? No -------------------------- METHODOLOGICAL INFORMATION -------------------------- 1. Description of methods used for collection/generation of data: With the assistance of our NGO partner, Spiti Ecosphere, two groups of adult participants were purposively selected at community meetings from residents of the Spiti Valley’s villages of Lahlung, Demul Khas, Khuric and Kwang. Eligibility for the two groups were as follows: Group 1 eligibility. Women aged 18 years and older, with a child under the age of five years. Women were asked about their pregnancy and childbirth experiences and their childrens’ healthcare experiences. Group 2 eligibility. Working adults aged 18 years and older. These adults were asked about their experiences with unplanned care for acute illness & injury. 2. Methods for processing the data: Recorded interviews were translated from Hindi to English using Sonix, software that automatically transcribes, translates, and organizes audio and video files. A member of our research team, a native Hindi speaker (TS), then compared the Hindi and English transcripts of each interview for accuracy. Approved English transcripts were imported into Dedoose software for coding. 3. Instrument- or software-specific information needed to interpret the data: The first author (AA) assigned codes to the English transcripts using open coding(28). To capture the full experience of participants, we assigned positive and negative (i.e., antithetical) codes, based on participants’ interpretation of their encounters with the care provider as positive or negative. We used code saturation to determine when enough interviews had been completed in each group for the codebook to be stable and move on to analysis(30). We analyzed responses to summarize experiences by age, gender, and location of residence. Analyses were completed using Dedoose (2021, version: 9.0.17) 4. Standards and calibration information, if appropriate: N/A 5. Environmental/experimental conditions: N/A 6. Describe any quality-assurance procedures performed on the data: N/A 7. People involved with sample collection, processing, analysis and/or submission: Ishita Khanna, Monika John (Data collectors) ----------------------------------------- DATA-SPECIFIC INFORMATION FOR: 20231031_Exploring_the_preferences__G1_Aguzzi.xlsx ----------------------------------------- 1. Number of variables: 32 2. Number of cases/rows: 8 3. Variable List A. Name: Timestamp Description: Date and time survey was taken B. Name: Participant number Description: Unique identifier for participant C. Name: Gender Description: Participant's gender (male/female) D. Name: Age Description: Participant's age (Between 18 and 24, Between 25 and 34, Between 35 and 44, Between 45 and 54, Between 55 and 64) E. Name: Residence Description: Participant's place of residence (Demul Khas, Other town in the Spiti Valley) F. Name: Education Description: Participant's highest level of education attained (No schooling, Lower secondary education, Upper secondary education, Post-secondary non-Tertiary education, Bachelor's degree or equivalent Tertiary education level) G. Name: Employment Description: Participant's employment status (Student, Agricultural part-time employment, Agricultural full-time employment, Non- Agricultural full-time employment, Self-employed full-time, Unemployed) H. Name: Marital status Description: Whether participant is single or married I. Name: Income Description: Whether participant's income is below or above 1,286 Rupees J. Name: Are you currently pregnant? Description: Yes/No K. Name: What are your thoughts regarding the need to consult a physician even if you are feeling well while pregnant? Description: Open answer L. Name: What services were available to you when you discovered you were pregnant? Do you prefer Western medicine or AYUSH (Ayurveda, Unani, Siddha, Sowa Rigpa)? Description: Open answer M. Name: Do you use herbal medicines from AYUSH during pregnancy? Description: Open answer N. Name: In the course of your pregnancy, do you see an OB/GYN who practices Western medicine? Description: Open answer O. Name: Do you prefer visiting an AYUSH provider or a Western primary care provider? Description: Open answer P. Name: How often during the past six months have you visited your AYUSH doctor or Western medical doctor for your pregnancy? Description: Open answer Q. Name: How far do you have to travel to see your AYUSH doctor or Western medical doctor for your pregnancy? Description: Open answer R. Name: Who will be handling your labor and delivery? Description: Open answer S. Name: Do you have any cost sharing for your pregnancy visit? Description: Open answer T. Name: What is your childs age? Description: Open answer U. Name: What is your childs sex assigned at birth? Description: Male/Female V. Name: In the event that your child becomes ill, where do you take him or her? Where do you take your child for medical care? Description: Open answer W. Name: Do you take them to an AYUSH doctor or a Western physician? Description: Open answer X. Name: Does your child receive immunizations in accordance with the National Immunization Schedule? In the case of yes, why? In the event that no, why not? Description: Open answer Y. Name: Where do you take your child for immunizations if you answered yes to the previous question? Is it an AYUSH facility or a Western medical facility? When it comes to immunizations for your child, how far do you have to travel? What is the cost of immunizing your child? Description: Open answer Z. Name: When your child becomes ill, do you seek treatment from an AYUSH practitioner or a Western medical practitioner? Why would you prefer one over the other? Description: Open answer AA. Name: What steps do you take to prepare for the birth of your child? Description: Open answer AB. Name: What kind of medical support did you receive during labor? Have you received Western medical care? Has an epidural been administered to you? Were you treated at a public or private Western medical hospital? Description: Open answer AC. Name: If you did not receive Western medical attention during labor and delivery, did you use AYUSH during this time and what was your experience? How did AYUSH medicine relieve your labor pain? Description: Open answer AD. Name: During your labor and delivery, did a birth attendant or a skilled health professional assist you? Is this person a Western medical professional or an AYUSH practitioner? Description: Open answer AE. Name: Are you required to pay when you see your provider? Since 2018, do you pay more? Less? None? Description: Open answer AF. Name: Since 2018, do you have to travel more for Western care? AYUSH care? Both? Description: Open answer 4. Missing data codes: NA 5. Specialized formats of other abbreviations used: NA ----------------------------------------- DATA-SPECIFIC INFORMATION FOR: 20231031_Exploring_the_preferences__G2_Aguzzi.xlsx ----------------------------------------- 1. Number of variables: 32 2. Number of cases/rows: 8 3. Variable List A. Name: Timestamp Description: Date and time survey was taken B. Name: Identity number Description: Unique identifier for participant C. Name: What is your gender? Description: Participant's gender (male/female) D. Name: What is your age? Description: Between 18 and 24, Between 25 and 34, Between 35 and 44, Between 45 and 54, Between 55 and 64 E. Name: Where do you currently reside? Description: Demul Khas, Other town in the Spiti Valley F. Name: What is your highest level of education? Description: No schooling, Lower secondary education, Upper secondary education, Post-secondary non-Tertiary education, Bachelor's degree or equivalent Tertiary education level G. Name: What type of employment? Description: Student, Agricultural part-time employment, Agricultural full-time employment, Non- Agricultural full-time employment, Self-employed full-time, Unemployed H. Name: Marital status Description: Whether participant is single or married I. Name: What is your monthly income? Description: Whether participant's income is below or above 1,286 Rupees J. Name: Have you experienced an injury, such as a work-related injury, agricultural injury, accident or other type of injury in the past two years that required prompt medical attention but did not require certification from your local health center? (should cover all injuries that are not certifiable by Indian Law) Description: Open answer K. Name: Can you tell me more about that injury? (explore: what happened, when did it happen) Description: Open answer L. Name: What kind of care did you get for the injury? (explore: medical care, home care) Description: Open answer M. Name: If an injury like that were to happen today, where would you go for care? Description: Open answer N. Name: What would be the best kind of care for this type of injury? (explore: western vs AYUSH) Description: Open answer O. Name: What would be the best kind of care for this type of injury? (explore: western vs AYUSH) Description: Open answer P. Name: Are you required to pay when you see your provider? Since 2018, do you pay more? Less? None? Description: Open answer Q. Name: Since 2018, do you have to travel more for Western care? AYUSH care? Both? Description: Open answer 4. Missing data codes: NA 5. Specialized formats of other abbreviations used: NA