This UTZ_readme20240209.txt file was generated on YYYYMMDD by Catharine Sparks on 20240209 ------------------- GENERAL INFORMATION ------------------- 1. Title of Dataset Time for Living & Caring (TLC) Study: Virtual Coaching to Maximize Dementia Caregivers' Respite Time-Use 2. Author Information Principal Investigator Contact Information Name: Rebecca L. Utz Institution: University of Utah, Sociology Department Address: 380 S 1530 E, RM 301, Salt Lake City, UT 84112 Email: Rebecca.Utz@csbs.utah.edu ORCID: 0000-0001-7734-7676 3. Date of data collection (single date, range, approximate date) 20220805 4. Geographic location of data collection (where was data collected?): University of Utah 5. Information about funding sources that supported the collection of the data: National Institutes of Aging R01AG061946 -------------------------- SHARING/ACCESS INFORMATION -------------------------- 1. Licenses/restrictions placed on the data: Public Domain 2. Links to publications that cite or use the data: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10838170/; https://clinicaltrials.gov/study/NCT03689179 3. Links to other publicly accessible locations of the data: NA 4. Links/relationships to ancillary data sets: NA 5. Was data derived from another source? No 6. Recommended citation for the data: Utz, Rebecca. 2024. "Time for Living & Caring (TLC) Study: Virtual Coaching to Maximize Dementia Caregivers' Respite Time-Use". The Hive: University of Utah Research Data Repository. http://doi.org/10.7278/S50d-2rgg-4549 --------------------- DATA & FILE OVERVIEW --------------------- 1. File List A. Filename: 20240205_TLC_Codebook_Utz.xlsx Short description: codebook B. Filename: 20240205_TLC_Utz.xlsx Short description: Complete raw data file. This longitudinal dataset includes data files for 166 unique IDs across six time points (baseline and weeks 4, 8, 12, 16, and 20). 2. Relationship between files: The codebook file provides variable names, field labels, etc. and is a companion file for the raw dataset. 3. Additional related data collected that was not included in the current data package: NA 4. Are there multiple versions of the dataset? yes/no No -------------------------- METHODOLOGICAL INFORMATION -------------------------- 1. Description of methods used for collection/generation of data: Data collection was based on a randomized controlled trial (RCT) design. Participants were randomized into either 1) a group receiving the full intervention for all 16 weeks of participation or 2) a group receiving partial intervention for the first 8 weeks and the full intervention for weeks 9-16. All participants received a follow-up survey 4 weeks after completing the intervention. ClinicalTrials.gov ID: ID NCT03689179 (https://reporter.nih.gov/search/uGkWt_WO8U69Zc76NyvmBQ/projects) Protocol Paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10838170/ 2. Methods for processing the data: The data are presented as they were collected. We have not made any changes to the data during the process of creating this dataset. 3. Instrument- or software-specific information needed to interpret the data: Multi-item indices are not calculated in this dataset. User should refer to PROMIS weblink (https://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions) to calculate scale scores (anxiety, depression, positive affect, global health, satisfaction time). The caregiver burden scale (https://dementiasherpa.com/wp-content/uploads/2018/12/FTLDA-CARGIVER-BURDEN-SCALE.pdf) and positive aspect of caregiving scales (https://pubmed.ncbi.nlm.nih.gov/22714876/) will also need to be calculated. 4. Standards and calibration information, if appropriate: NA 5. Environmental/experimental conditions: There are no environmental/experimental conditions associated with these data. All data were collected remotely using online delivery methods. Refer to question above for experimental design associated with this RCT. Documented support for online data collection with this population: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8691858/ 6. Describe any quality-assurance procedures performed on the data: Data archived here are raw but have been verified for accuracy and completeness by data owners. 7. People involved with sample collection, processing, analysis and/or submission: Bob Wong, Eli Iocab, Catharine Sparks, Amber Thompson ----------------------------------------- DATA-SPECIFIC INFORMATION FOR: 20240205_TLC_Utz.xlsx ----------------------------------------- 1. Number of variables: 279 2. Number of cases/rows: 166 unique cases / 1109 rows including up to seven repeated measures per person 3. Variable List See attached codebook (20240205_TLC_Codebook_Utz.xlsx).