This Survey_responses_and_data_key_readme.txt file was generated on 20170821 by Andrew Wilson Reviewed by Rebekah Cummings and Daureen Nesdill on May 21, 2018; DN 20220121 Links to publication field updated 20211209 DN ------------------- GENERAL INFORMATION ------------------- 1. Title of Dataset (HPV Vaccine) Survey responses and data key 2. Author Information Principal Investigator Contact Information Name: Andrew Wilson Institution: University of Utah, College of Nursing Address: 10 South 2000 East, Room 2200, Salt Lake City, Utah 84112 Email: andrew.wilson@nurs.utah.edu Associate or Co-investigator Contact Information Name: Deanna Kepka Institution: University of Utah, College of Nursing Address: 10 South 2000 East, Room 2200, Salt Lake City, Utah 84112 Email: deanna.kepka@hci.utah.edu Alternate Contact Information Name: Mollie Cummins Institution: University of Utah, College of Nursing Address: 10 South 2000 East, Room 2200, Salt Lake City, Utah 84112 Email: mollie.cummins@utah.edu 3. Date of data collection: 20130101 to 20131231 4. Geographic location of data collection: Utah (specifically, we recruited participants from the University of Utah Community Clinics through the University of Utah Primary Care Research Network.) 5. Information about funding sources that supported the collection of the data: This project was supported in part by Huntsman Cancer Institute (HCI) and Huntsman Cancer Foundation. Funds from Deanna Kepka's HCI research account provided 1,000*$5.00 incentive ($5,000.00) for participation incentives. -------------------------- SHARING/ACCESS INFORMATION -------------------------- 1. Licenses/restrictions placed on the data: Only for not-for-profit uses, no licenses or restrictions apply, must give attribution. CC BY NC - Creative Commons Attribution, Non-Commercial 2. Links to publications that cite or use the data: Wilson, Andrew R Mia Hashibe, Julia Bodson, Lisa H. Gren, Brooke A. Taylor, Jessica Greenwood, Brian R. Jackson, Rosemary She, Marlene J. Egger, and Deanna Kepka. “Factors related to HPV vaccine uptake and 3-dose completion among women in a low vaccination region of the USA: an observational study.” BMC women's health vol. 16 41. 22 Jul. 2016, doi:10.1186/s12905-016-0323-5 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4957275/ Wilson, A.R., Hashibe, M., Bodson, J. et al. Factors related to HPV vaccine uptake and 3-dose completion among women in a low vaccination region of the USA: an observational study. BMC Women's Health 16, 41 (2016). https://doi.org/10.1186/s12905-016-0323-5 3. Links to other publicly accessible locations of the data: https://osf.io/ajtcw/ 4. Links/relationships to ancillary data sets: 5. Was data derived from another source? No 6. Recommended citation for the data: Wilson, Andrew and Kepka, Deanna. (2017). HPV Vaccine Survey Responses. The Hive: University of Utah Data Repository. Data set. doi:10.7278/S53B5X9S --------------------- DATA & FILE OVERVIEW --------------------- 1. File List A. Filename: Survey_responses_and_data_key.xlsx Short description: Contains response data on first tab and description of variables (data dictionary) on second tab. B. Filename: Survey_Booklet.pdf Short description: Copy of questionnaire distributed to participants. 2. Relationship between files: The file Survey_Booklet.pdf contains the questionnaire participants received and Survey_responses_and_data_key.xlsx is the collection of their responses, with a tab for a data dictionary. 3. Additional related data collected that was not included in the current data package: N/a 4. Are there multiple versions of the dataset? No -------------------------- METHODOLOGICAL INFORMATION -------------------------- 1. Description of methods used for collection/generation of data: We recruited participants from the University of Utah Community Clinics through the University of Utah Primary Care Research Network. An initial data query of potential participants was performed to identify young women age 18–26 years old who had a University of Utah Community Clinic visit in the 12 months preceding the query. Two groups of 1,000 were created. In the first group, we included 336 women who had at least one documented dose of the HPV vaccine and 664 unvaccinated women. In the second group we included 233 who had initiated the vaccine and 776 unvaccinated women. Potential participants were sorted by zip code and only those within the catchment areas for the University of Utah Community Clinics were included in the sample. Potential participants were mailed a letter briefly describing the project and given the opportunity to opt out. Remaining participants were mailed a letter describing the project in greater detail, a paper version of the survey, and a business reply envelope to return the survey. Link for more details: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4957275/ 2. Methods for processing the data: Surveys were returned in paper format and entered into a centralized Excel file. 3. Instrument- or software-specific information needed to interpret the data: No special software required. File will open in Excel and is importable into most any analytic software packages. 4. Standards and calibration information, if appropriate: N/a 5. Environmental/experimental conditions: N/a 6. Describe any quality-assurance procedures performed on the data: Primary author confirmed all surveys were correctly entered by double entering all (327) surveys. 7. People involved with sample collection, processing, analysis and/or submission: Michelle Judd, Echo Warner, and Ke Zhang helped with survey distribution, collecting responses, and trsnsferring data into Excel file. ----------------------------------------- DATA-SPECIFIC INFORMATION FOR: Survey_responses_and_data_key.xlsx ----------------------------------------- 1. Number of variables: 100 2. Number of cases/rows: 327 3. Variable List A. Name: [variable name] Description: [description of the variable] Value labels if appropriate B. Name: [variable name] Description: [description of the variable] Value labels if appropriate 4. Missing data codes: Code/symbol Definition Code/symbol Definition 5. Specialized formats of other abbreviations used